当您的孩子被诊断患有一种罕见的或复杂的条件下,是很自然的感到担心将来会怎样 - 而且考虑怎样,你可以找到支持。像大多数的父母,你可能直奔到互联网中寻找答案。您选择医院之前,它有助于了解如何寻找。在做你的研究,考虑特殊照顾的复杂情况下,这些五个组成部分,通过赞助波士顿儿童— the #1-ranked pediatric hospital in the country for the sixth year in a row.

1. A team approach

由于复杂的状况会影响孩子的健康的许多不同的方面来说,找小心,地址,所有的从一队医生的需求,代表了不同学科的非常重要的。如果你的孩子得了中风,例如,团队可能包括神经学家社会工作者物理治疗师大家。该小组应共同努力 - 甚至安排您的孩子一起约会 - 所以它是尽可能的方便,为您和您的家人让每一个访问中最出。

Keep in mind: When researching pediatric hospitals, you’ll likely come across the word “interdisciplinary” quite a bit. It’s a great concept: Clinicians from different specialties and disciplines working together for optimal care. While “interdisciplinary” is a fantastic marketing term, it isn’t always put into practice properly. Look for a pediatric hospital that doesn’t just use this buzzword to attract patients, but that actually follows through with joint clinician appointments and collaboration.

2. Research and innovation

When your child receives care at a world-class pediatric hospital like Boston Children’s, they gain access to new treatments, procedures, and other innovations developed right on site. What’s more, they may have the opportunity to participate in a clinical trial just for kids, which can benefit both your family and future patients as well.

Keep in mind: Scientific innovations borne from pioneering research inform and advance clinical care — and that’s especially important in rare or complex conditions. Boston Children’s has dedicated one million square feet to research space and receives more than $388 million in funding from the National Institutes of Health.

3. Quality数量

考虑医院多少经验与您的孩子的病情。越是过程临床医生做或他们看到一个特定的条件下更多的患者,更多的经验,他们有。反过来,他们可能会更熟悉的新的治疗方法,新的研究发现,这可能转化为更好的结果或为您的孩子的生活质量的新的解决方案。

Keep in mind: Because hospitals present data differently and because of the uniqueness of each child’s situation, it’s important that statistics and outcomes are fully explained. Hospital and physician characteristics also affect patient outcomes, such as length of hospital stay, complications, and mortality. Ask your pediatric hospital to share its results with you.

4.支持服务和文化

Look for a pediatric hospital that offers more than just exceptional clinical care. Kids with complex conditions — and their families — can benefit from a full spectrum of支持服务, including social work, child life, and family-to-family programs. These resources can help support your family as you navigate the care process.

Keep in mind: Pediatric specialists shouldn’t just treat your child’s condition. They’re also in their field because they love kids — and want yours to live their best life. At Boston Children’s, we believe that you’re the best expert in your child, so we partner with you every step of the way.

5. Coordinated care

Specialty care is crucial when your child has a complex condition. But even the best interdisciplinary care team can’t — and shouldn’t — replace your child's pediatrician. The team should coordinate with your pediatrician to provide seamless, well-rounded care, keeping them updated and engaged every step of the way.

Keep in mind: If your pediatric hospital also offers on-siteprimary care services,很容易对整个医疗团队,为您的孩子一起工作。

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